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13th January 2022

Workshop to seek young people’s views on cancer data

DATA-CAN, in partnership with the Children’s Cancer and Leukaemia Group (CCLG), BRIGHTLIGHT and Candlelighters, is organising a workshop on 27 January to gather young people’s thoughts on cancer patients’ medical data.   

The young people’s virtual workshop will take place on 27 January 2022, 16.00-18.30 and is open to those with experience of cancer in children and young people, either as a patient or as a carer.  

During the workshop, participants will be asked to discuss their views on cancer data, what is collected and how it is shared and used in research. 

The aim is to gather the views of young people with cancer and to look at ways we can increase awareness about how data is used. We will also explore how we can make sure families feel confident that their data will be safe, while ensuring that researchers have the access to health data they need.  

If you are interested in being involved, and are available to participate on 27 January, please email Emily Connearn –

Participants will be reimbursed for their time at a rate of £50 for the 2.5 hour workshop.