Partnering with patients

DATA-CAN is working with patients and carers to ensure health data is used transparently and responsibly.

How we work with patients and the public

Patients and carers are involved at all levels of DATA-CAN’s decision-making process.
Patient benefits of using data

Data is used in lots of different ways to improve cancer care and outcomes for patients.
Patient and industry partnerships

Our patient group works with commercial partners to discuss health data research and explore fair value to patients and the public.

DATA-CAN patient and public involvement and engagement group member, Yvonne Adebola, talks about how the Hub is working with patients and her involvement in the PPIE group.

Cancer registration – Why it matters and what you need to know

When a person is diagnosed with cancer in the UK information about them is automatically included in their national cancer registry. Information about their disease and the treatment they are receiving helps to:

Improve the quality of care
Plan cancer services
Track cancer rates and establish survival statistics.

You can download a leaflet about the the National Cancer Registry, which is part of Public Health England, here.